Evidence · Research paper
A Core Outcome Set for Family-Centered Care in Neonatal Intensive Care Settings: An International eDelphi Study and Online Consensus Meeting.
- Care and rehabilitation
- Communicating with families
- Medical
- Nursing
- Professional practice
Summary
An international eDelphi study with a consensus meeting developed a core outcome set for evaluating family-centred care interventions in neonatal intensive care. Stakeholders included healthcare professionals, parents and ex-NICU patients, scoring outcomes derived from systematic reviews and focus groups. The final set comprises ten outcomes spanning parental domains (bonding, participation in care, discharge readiness, stress, shared decision-making, knowledge) and infant domains (pain and stress, growth, nosocomial infection, length of stay). It is intended to standardise outcome reporting in family-centred care research, with relevance to paediatric critical care teams interested in family partnership.
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- Open (Creative Commons)
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